Falling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease

Published: October 11, 2021

Tight graphic silhouette illustrations of the aging process mean and women
  • An increasing number of Kawasaki disease (KD) patients are becoming adults and undergoing a health care transition (HCT) from a child to an adult model of healthcare which represents a risk of loss to follow up and can result in increasing morbidity and mortality.
  • The Six Core Elements essential to a successful HCT include: 1) developing a policy or guide, 2) tracking/monitoring, 3) assessing readiness, 4) planning, 5) transfer of care, and 6) transition completion.
  • This Scientific Statement provides a summary of available literature and expert opinion pertaining to KD and HCT of children as they reach adulthood, reviews the existing life-long risks for KD patients, presents current guidelines for long-term care of KD patients, and offers guidance on assessment and preparation of KD patients for HCT.